Holding Madison for the 1st time
Madison in her little blue light sunglass shields..they protect her eyes while she is under the blue jaundice lights
Sweet baby-looking so much better today!
I just love her little tiny hands!Sorry that I did not get an update posted yesterday for everyone. I just got back from the hospital and this is the latest update...
Madison is doing a lot better today. She had a rough day yesterday. Yesterday, they were having a hard time keeping her blood pressure up and had her on every possible medication they could to keep it up. Her toes were still somewhat black and she is still having problems with her skin being so fragile and tearing. Each day, she gets about 2 blood transfusions plus platelets to keep her blood levels up. She has so little blood and they have to take so much to run tests so they have to keep re -giving her some. They also started Madison on some medication to close her PDA valve in her heart. All babies are born with it open but it usually closes after birth and Madison's has not. The drs thought this was contributing to her low blood pressure. My dad, Jason, our our old Bishop, Bishop Mower, came down to the hospital and gave Madison another blessing. The blessing really helped as today she was doing so much better.
Today, Madison is off all of the blood pressure medications for the moment. She is keeping it stable and the heart medication has seemed to help. It is a 3 day course of medication so they will test her heart again after the 3rd day. Madison's toes look a lot better. Her one foot is has almost all the black gone! She was much more active today. I even got to hold her in my hands for 2 minutes while the nurse put the jaundice blue lights underneath her. It was great to be able to hold her! The doctors did some head ultrasounds yesterday but we are still waiting for the results to see if their is bleeding in her brain. The doctor thought that there was some but he was unsure how bad it was. We are taking it day by day and glad that she is having a little better of a day today.
Madison is doing a lot better today. She had a rough day yesterday. Yesterday, they were having a hard time keeping her blood pressure up and had her on every possible medication they could to keep it up. Her toes were still somewhat black and she is still having problems with her skin being so fragile and tearing. Each day, she gets about 2 blood transfusions plus platelets to keep her blood levels up. She has so little blood and they have to take so much to run tests so they have to keep re -giving her some. They also started Madison on some medication to close her PDA valve in her heart. All babies are born with it open but it usually closes after birth and Madison's has not. The drs thought this was contributing to her low blood pressure. My dad, Jason, our our old Bishop, Bishop Mower, came down to the hospital and gave Madison another blessing. The blessing really helped as today she was doing so much better.
Today, Madison is off all of the blood pressure medications for the moment. She is keeping it stable and the heart medication has seemed to help. It is a 3 day course of medication so they will test her heart again after the 3rd day. Madison's toes look a lot better. Her one foot is has almost all the black gone! She was much more active today. I even got to hold her in my hands for 2 minutes while the nurse put the jaundice blue lights underneath her. It was great to be able to hold her! The doctors did some head ultrasounds yesterday but we are still waiting for the results to see if their is bleeding in her brain. The doctor thought that there was some but he was unsure how bad it was. We are taking it day by day and glad that she is having a little better of a day today.
5 comments:
Why do you have an IV in sister? I thought you were out of the hospital.
the last picture is off the day she was born..not today..
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Hey guys....just wanted to let you know you are in our prayers. Sweet little Madison looks so precious and fresh from heaven....so sweet.
That is such wonderful news, that is so great about her blood pressure doing better! :) Still keeping you guys in our prayers everyday.
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